It has been a bit busy for me lately as I have been working doing taxes with H & R Block. Not sure I really enjoyed it but good experience and some extra money. I am basically done for the season due to the returns that come in now are too difficult for a first year employee to do. I am continuing to take classes though.
Stephanie and Justin are doing well. They are planning on visiting Greg and family sometime this spring for a vacation. They are looking to move down there possibly, can't stand the weather up here any longer. Today was nice, 70 degrees but tomorrow will be 40, not very nice.
I received an email from Adult congenital heart association of which Stephanie and I are members. See below for the latest bill that they are trying to pass. For those that are interested, you could help by writing to your Senators and Congressman. There is a great need for resources, research and assistance for these children that are now adults. Insurance being a serious problem. Some patients will never be able to work full-time (like Stephanie)and struggle to attend school full-time. Therefore there is a problem with insurance coverage. This not only causes anxiety, depression and a hopeless feeling for them it also causes financial hardship. Hopefully this will pass to aid these people that are in great need of help.
Here is the link to the bill:
http://durbin.senate.gov/showRelease.cfm?releaseId=309944
) Go to http://www.senate.gov and http://www.house.gov/ to look up your representatives and their email addresses
2) Draft your email - Here is a template to get you started.
3/18/09
Dear Senator Brown:
I am writing as a member of the Adult Congenital Heart Association to ask for your help in making a brighter future for all those born with heart defects. Yesterday the Congenital Heart Futures Act, legislation calling for research, surveillance, and education in congenital heart disease, was introduced in the Senate by Senators Durbin and Cochran and in the House by Representatives Bilirakis and Space. I am writing to ask you to co-sponsor these bills (S. 621 and H.R. 1570) and help all those born with heart defects live longer, healthier lives.
Congenital heart disease is this country’s number one birth defect and kills twice as many children as childhood cancer. Although many children now undergo successful heart repair, most will require special life-long care and face high risks of developing additional heart problems. But up until now there has been virtually no federal investment to address the research and education needs of the 1.8 million Americans now living with congenital heart disease.
My daughter was born with complex heart defects and has undergone several heart surgeries before the age of 3. She has done moderately well throughout her childhood, but is now an adult and facing new issues. She will most likely be facing a heart transplant some day because there is nothing else they can do for her. Along with many other issues, insurance coverage for her is a problem. She will never be able to work full time and struggles to attend school full time. There is a great need for research, awareness and resources for these children that are now adults. Please help my daughter survive to become a healthy, contributing citizen.
To sign on as a co-sponsor of the bill, House Members should contact Dan Farmer with Rep. Space at (202) 225-6265 to discuss support of H.R. 1570. Senators should contact Sara Singleton with Senator Durbin at (202) 224-2152 re: S. 621.
Thanks in advance for your help in securing a future for all those living with congenital heart disease.
Sincerely,
Beth A. Day
833 Peach Hill Dr.
Dayton, OH 45458
bethday2@aol.com
4) Send your email. Be sure to include your full mailing address as well as your email address. Don't use US mail, since thanks to the anthrax scare it now takes many weeks for mail to arrive in Congress.
That's all there is to it!
Hope all is well with everyone.
Beth, Justin and Stephanie
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